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Local businesses host holiday spina bifida benefit

December 21, 2018

The Tailor Shop and 109 Aesthetics rang in the holiday season Wednesday at the Sleigh Bells in the Sand fundraiser for the West Michigan Spina Bifida Organization.

As a part of downtown Ludington’s 12 Days of Christmas Shopping promotional event, both businesses — located at 109 E. Filer St. — offered adult beverages, food, live music and photo opportunities with Santa Claus at the beach-themed holiday event devoted to raising funds for the organization and informing people about spina bifida, a birth defect that can cause permanent physical and developmental disability.

All proceeds from the event will go to the organization, which offers a myriad of support systems and services to those living with spina bifida and to those who have children or family members with the condition.

Ms. Wheelchair Michigan 2016 Jamie Spore of Ludington, office assistant at the Tailor Shop, helped to spearhead the event.

Spore knows the realities of the spina bifida all too well, having lived with the condition since birth. She said she hoped to increase awareness about the condition while raising money for the organization.

“The West Michigan Spina Bifida Organization is a worthy cause that we are proud to support because of all of the resources that it provides to individuals in West Michigan who were born with spina bifida,” Spore said.

Spore added that the organization also provides social resources to people with spina bifida.

“(The) organization provides accessible social events, which are important because it is not always easy for an individual with spina bifida and their family members to participate in social activities.”

Tracy Scheid, owner of The Tailor Shop, and Amanda Haiss, owner of 109 Aesthetics, said the event was a success, drawing in dozens of patrons and visitors within the first few hours and encouraging spirited, informative discussion about spina bifida.

“I’m thrilled with the turnout we’ve had,” Scheid said. “It’s been steady; as soon as 2 p.m. hit, people just kept coming through the door. Everyone wanted to see Jamie.”

Read the full story in Thursday’s Ludington Daily News print and e-Editions.

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