AP NEWS

Glenville School steps out in style on Mismatched Shoe Day

April 5, 2019

GREENWICH — It wasn’t the start of a wacky fashion trend — it was just a day of fun and fundraising as students, teachers and staff at Glenville School came decked out in mismatched pairs of shoes on Thursday.

The “Mismatched Shoe Day” was held to support research into Vanishing White Matter disease, a rare neurological condition that erodes myelin, the brain’s white matter.

Sam Buck, an 8-year-old from Greenwich, has been diagnosed with the condition, and he often wears mismatched shoes — a cowboy boot and a sneaker, typically — when he heads to Glenville School in his wheelchair.

His mother, Allyson Buck, said. “We wanted to come up with a fun fundraiser that people would get behind, so this was it..”

Participants were asked to donate $10 to the VWM Families Foundation, and snap a picture. The photos were posted on social media and tagged to @vwmff and @samvsvwm. The foundation funds VWM research projects and supports families living with VWM by paying for critical expenses not covered by insurance.

Vanishing White Matter disease is an extremely rare ailment, affecting about 250 kids in the world. The genetic disorder affects the nervous system and causes neurologic symptoms that vary widely. There is no cure for VWM; symptoms are treated as they arise.

The event was part of a national fundraiser. For more information on VWM, visit ulf.org/vanishing-white-matter-disease.